According to the CDC, the most recent estimate is 1 out of every 59 babies born in the US have ASD (Autistic Spectrum Disorder). That’s about 17 out of 1000 people.
Since 2000, we have seen a dramatic growth in autism diagnoses. Some worry that there exists a link between vaccines and the development of autism in children, but this fear is utterly unfounded. Instead, this rising “epidemic” is decidedly connected to an increased awareness and understanding of the neurodiversity that has always existed, but for so long went unrecognized and therefore undiagnosed.
Because autism is behavioral and can’t be identified with a simple blood test, it is understandable that it has taken our collective humanity a number of years to begin to fully grasp the range of characteristics associated with the disorder. The prevalence of autism is currently 1 in 42 for boys and 1 in 189 for girls. Scientists are still unsure why there is exists a gender ratio of autism showing up in about five boys for every girl.
What we do know, though, is that there are plenty of ways to embrace unity despite our differences.
At Iterators, we consider ourselves neuroinclusive, and we believe it is important to look beyond typical biases that often occur in hiring. When we conduct interviews, we confidently see past typical autistic or other neurodiverse traits, such as dyslexia or ADHD, that may concern other workplace professionals, because what matters to us is that we find the person who will get the job done in the best, most efficient way.
Also, it’s just science. Studies show that people with ASD are better at focusing on tasks. Temple Grandin said it best:
“What would happen if the autism gene was eliminated from the gene pool? You would have a bunch of people standing around in a cave, chatting and socializing and not getting anything done.”
Temple Grandin
There is so much to be said for working to eliminate hiring bias. Not only will it improve the lives of the many neurodiverse individuals who are unemployed or underemployed, but companies stand to gain strong workers who may lack extended eye-contact, but make up for their social differences with above-average skills and dedication to the job. Another added benefit of diversifying an office by bringing in more people with neurodiversity is the impact it will have on co-workers who might otherwise not come in contact with these individuals in a meaningful way. This is how we change the world.
“Autism Parenting Magazine is an award winning publication aimed at improving the quality of life for families effected by autism.
Here at Iterators, we include neurodiversity high on the list of differences built into inclusion.
Neurodiversity: another difference to keep in mind
The term “neurodiversity” was coined by Judy Singer, an Australian sociologist, in the mid-90s. She wrote in her honors thesis that differences in neurology should be recognized and respected as a social category, similar to ethnicity, socioeconomic class or physical disability.
Harvey Blume further popularized the word in his 1998 piece in The Atlantic: “Neurodiversity may be every bit as crucial for the human race as biodiversity is for life in general.
Who can say what form of wiring will prove best at any given moment? Cybernetics and computer culture, for example, may favor a somewhat autistic cast of mind.”
What year is it?
It’s amazing, really, to think that it took until nearly the end of the twentieth century for our culture to begin to view the spectrum of differences in our neurology as important and valid variations that require just as much acknowledgement and respect as the many other factors of diversity.
The level of tolerance we have as a nation is linked tightly to hiring bias. When companies are hiring, if they’re “woke” enough, will pay close attention to the diversity of the workplace. According to national industry medians, companies that are ethnically diverse perform 35% higher than less diverse workplaces. Gender diversity helps boost performance 15%. Again, though, most of the time the only differences taken into consideration are race and gender. Neurodiversity often falls to the wayside.
McKinsey explains the somewhat depressing reality:
The United Kingdom does comparatively better in racial diversity, albeit at a low level: some 78 percent of UK companies have senior-leadership teams that fail to reflect the demographic composition of the country’s labor force and population, compared with 91 percent for Brazil and 97 percent for the United States.
We’ve got a lot of work to do.
So, as a whole we have focused on increasing numbers and boosting inclusivity in many ways. But, in terms of recognizing the abilities of neurodiverse individuals, most of whom are unemployed due to hiring biases, we have some catching up to do as a society.
]]>The HR space has been rife with talk about employee engagement over the past few years. Studies have repeatedly shown that engaged workforces are more productive. Every four years Gallup conducts research in this area, and in their last study showed:
"Work units in the top quartile in employee engagement outperformed bottom-quartile units by 10% on customer ratings, 22% in profitability, and 21% in productivity. Work units in the top quartile also saw significantly lower turnover..."
Hiring managers are very familiar with this data, and 'work culture' is a primary focus for leaders with an eye on the bottom line because it is now accepted knowledge that employee engagement is necessary to reach peak profitability. Hiring managers are also aware of the data around how diversity impacts employee engagement. Research conducted by Deloitte showed that:
“There is a statistically significant relationship between diversity practices and employee engagement at work, for all employees".
There is a statistically significant relationship between diversity practices and employee engagement at work, for all employees.
The research demonstrates that employee perceptions of their organization’s diversity practices were directly related to their levels of engagement. Importantly, perceptions in this case are not of the diversity ideology or values, but more importantly perceptions of actual ‘policies and practices that make up an organization’s diversity practices’ – the tangible actions taken for diversity.”
The Speech Effect
There are approximately 6 and 8 million people in the U.S. have some form of language impairment. It is estimated that more than 3 million Americans stutter. A speech impediment is one of the disabilities most difficult for a hiring manager to get past.
Diversity must be a whole mindset that is embraced throughout your organization; segmenting diversity advancement by class (race, gender, sexual orientation, diversity etc.) will slow the process and hinder your staff from being truly inclusive. If you as a leader accept the research that proves engaged workforces are more productive and profitable, and that diversity greatly raises the level of engagement for your employees, you must find a way to implement inclusive diversity within your organization. You can begin with the US Chamber of Commerce’s Leading Practices on Disability whitepaper and begin to consider how you move your organization forward to greater diversity.
In an attempt to dispel some uncertainty around which communication behaviors and words may unintentionally impact people with speech-language disorders, I will elaborate on four I have come across through my clinical practice. Please note that I do not claim to have a speech-language disorder and do not know what it is like to have someone say these things to me. However, I do know what it is like to sit across from a client who painfully recounts these episodes and tries to make sense out of them. It is as an ally for people with speech-language disorders that I share this information and welcome others to share their first-hand experiences.
Note: The format and inspiration for this blog came from Dr. Maura Cullen’s book 35 Dumb Things Well-Intended People Say.
This is typically said when someone wants to comfort a person who stutters by suggesting that they may not stutter their whole life. It is meant to communicate hope.
This statement is uninformed and may make a person who stutters feel frustrated and misunderstood. A person who stutters likely knows a great deal about stuttering, whether through their own research, experience, or education on the topic. If they have had the desire and resources to change their speech, they have likely invested a great amount of time, energy, and resources towards their communication goals. With that said, they are likely aware of the fact that approximately 75% of children “outgrow” stuttering (https://www.nidcd.nih.gov/health/stuttering) and that they did not fall into that statistic. Yes, some children “get over” stuttering, but some do not. For some, stuttering is something that they must manage throughout their lives and no amount of effort or resources will change the fact that they are a person who stutters. When someone suggests that they might “get over” their stuttering, they may feel that their efforts and identity are discounted.
An understanding of speech and language disorders can help inform interactions with people who are speech and/or language impaired. Understanding how and why their communication is as it is will help you make informed comments, should their speech become a conversation topic. There are wonderful resources on the topic of stuttering through the Stuttering Foundation and National Stuttering Association. Additionally, you can always feel free to direct your questions to our speech-language pathologists at The Speech Factor [link “Ask an SLP”]. Regardless of your knowledge of communication disorders, it is generally a good rule of thumb to focus in on the content of your conversation partner’s message and not on the way in which they communicate it.
For some, stuttering is something that they must manage throughout their lives and no amount of effort or resources will change the fact that they are a person who stutters.
Kelly McHugh
When another person is struggling to communicate in some obvious way, it may seem cruel to just sit back and watch. Jumping in and helping them communicate their thoughts may seem like a kind thing to do.
This is particularly relevant to people who stutter and/or have word-finding difficulties. While it may take some people a longer time to communicate their messages, they are their messages to communicate. When someone jumps in and communicates their thoughts, it suggests that their message is not important or worth taking the time to hear. Additionally, their intent may be lost in another person’s completion of their thoughts.
Allowing people to share their messages regardless of how they communicate allows for a shared and meaningful interaction. If it is difficult to understand another person’s message, asking for clarification is always appreciated! This communicates to the other person that their message is important and that they are worthy of being understood.
Allowing people to share their messages regardless of how they communicate allows for a shared and meaningful interaction
Kelly McHugh
This is typically intended to serve as a compliment. It suggests that a person is not like other people who share their diagnosis and implies that they are more “acceptable” because of that.
This statement could be offensive to some. If someone identifies strongly with their diagnosis, you have made it clear to them that you see people with their diagnosis as “weird.” It communicates to the person that the less they are like people who share their diagnosis, the more normal they are.
Using comparative language to describe someone always bears with it some level of rejection. When communicating to connect, using language that suggests acceptance tends to foster a more positive experience for everyone involved.
When communicating to connect, using language that suggests acceptance tends to foster a more positive experience for everyone involved.
Kelly McHugh
This is typically said in an attempt to connect with another person. Shared experiences often create connections, so this may seem like a logical way to build rapport with someone.
For someone with a diagnosed word-finding impairment, having trouble finding the right word may be more than an inconvenience. It may mean that they have to keep a running list of things and people they may interact with throughout their day to accommodate their impairment or rely on alternative means of communication to get their messages across. By saying that the same thing happens to you, you are suggesting that it happens in the same way and to the same extent. For someone who significantly struggles with something, this language could make their experience feel trivialized.
When someone is clearly struggling with something, active listening and empathizing go a long way (e.g. saying “that must be frustrating to not be able to think of the word you want to say”)! Empathy often opens the gate to connection and may help people share their experiences in a thoughtful way.
This is by no means an exhaustive list and is intended to start a conversation around how our communication affects others. While uncertainty is uncomfortable and ever-present in our world, together we can share our experiences and build a collective awareness that connects us.
]]>Linguistic diversity, vocal styles, and speech habits are all the subject of Are Linguistics The New Forefront of Diversity, the most recent article I read which resonated with me. It caught my attention for a number of reasons.
See the link below:
www.fastcompany.com/3052771/are-linguistics-the-new-forefront-of-diversity-initiatives
To start, one of the authors quoted in this article is a professor at Clark University, which is a research university dedicated to diversity in its student body.
I myself am a graduate of this university! In addition, I am a speech-language pathologist, which means I spend my time as a professional helping others who have difficulty communicating by teaching them skills and strategies to assist them in communicating as effectively as possible. Related to this, the authors noted some terms that relate to overall communication, those being: vocal fry, “upspeak” and “uptalk.”
To shed light on these vocal qualities, it is important to know what each of these terms refers to:
Vocal fly, “uptalk” and “upspeak” are considered to be a personal linguistic habit and style of speaking. Often, people may not even know they have these qualities in their speech until someone points it out to them. Just like any habit, over time, they become less noticeable and conscious to the person who is using them.
The authors point out that these various vocal qualities are disproportionately associated with a woman’s style of speaking over a man’s style of speaking even though there is no evidence to demonstrate that women use these styles more often than men.
This was notable as it points to a bias and assumption about women, especially women in the workplace; this is often mischaracterized or misinterpreted. In the article, the authors even note that women “’continue to be held to a standard where the idea is that they need to conform more to the way men speak.’” This in and of itself is a bias towards women in the workplace, be it conscious or unconscious.
When thinking about this issue of speech habits and vocal styles, it brought to mind that this article raises issues that are in contrast to those with speech-language impairments. In both of these cases, individuals present with a different way of speaking and expressing themselves. For those with speech-language impairments, their communication is not a habit or a style; rather, it is due to a specific impairment, which can manifest itself as difficulty producing certain sounds accurately, or the fact that they may take extra pauses while they speak, and may us words “um” and “like” while they are talking.
The difference between the general population who may be using these vocal styles and many individuals with speech-language disorders (especially those who have received speech-language therapy in their life) is the awareness that their speech is different. Many individuals work tirelessly to minimize these differences, and what they express is the best they are able to do. This is especially true during job interviews, presentations, and other public speaking events where talking is the main form of communication and the setting is of a professional manner.
When thinking about either group, those who use vocal habits or those with speech-language impairments, it is clear that individuals, especially in a professional setting, place far too much value on the way people express themselves relative to the actual content of what is being said. It would be better for everyone if people could look past how others speak, remove judgment, and focus on what the person is actually saying. This would allow people to be seen for their strengths, talents, and potential rather than purely for the way they talk.
Clark University’s motto is Challenge Convention, Change the World and Clark University values its community and strives to teach students with diverse backgrounds and who are from all over the world. From my time at Clark University, I can vouch for the fact that they empower their students to be a guiding force in their community from the top down. I urge those at the top, deans, professors, support staff, and administrators to “challenge convention” and guide others in how to decrease the bias against the way people speak, and to encourage an open mind and attitude towards people based on the content of what they say rather than how they say it.
]]>A family member with a language disorder came home late from school explaining that his foreign-language teacher kept him after class, suggested he transfer to a different class, stating she thought he would be "happier." She did not ask about his overall happiness or what this change would due to his academic schedule or extra-curricular activities.
While checking, it was discovered that the class she recommended was for students who were at least one year behind in the academic subject, and statistically, there was a higher percentage of students in this class with a learning disability.
This is a stunning example of how unconscious bias permeates our everyday experiences.
As a society, we do not accommodate differences well, but when we do, it almost always works better for all.
Many well-intentioned people assume if you have a language disorder you also have a cognitive impairment and it’s a form of unconscious bias to pigeonhole everyone with such a broad brush.
As a society, we do not accommodate differences well, but when we do, it almost always works better for all. This is why diversity is so important in schools, businesses, and society as a whole.
We have learned to accommodate certain differences well. For example, another family member came home excited with the news that they had two co-teachers for the coming school year. We did not know why, but the reason soon became crystal clear. One co-teacher spoke all lessons to the class while the second co-teacher signed every word for the hearing-impaired student in class. In the process of adapting for this student, the entire class learned sign language. It also taught the class the real meaning of diversity, acceptance, and teamwork, which are all valuable tools in the workplace.
Our family member never did change classes. He told his teacher he was not academically behind and thought he would be bored in the other class. He also told her the change in schedule would conflict with the honors physics class.
Some months later, the foreign language teacher bumped into us and it was evident she learned a valuable lesson. She expressed how much fun she had teaching this student. She also said she taught for 25 years and hadn't had the opportunity to experience a lot of diversity, and now felt like the master teacher she was considered to be.
]]>So – you’ve successfully built a diverse workforce, but now you realize that the transformation you’re aiming for is only partly accomplished; that your workplace culture must change, too, to accommodate the varied people in it. You want to start the work of building this matching culture – a culture of inclusion that will ensure that all of your employees feel welcomed and relish coming to work every day? Great! You’re doing the right thing. With that intention in mind, how can you best begin to build a culture of inclusivity and awareness?
The best first step toward designing a successful inclusion strategy for a diverse workplace is to listen to what your employees are saying. It seems obvious, but true listening is in short supply in our frenetic, hierarchical world. However afraid you are to understand the issues in your organization and bring them to light (and however much your legal team advises against it), knowledge is power, but it has to be done in a respectful and culturally competent way.
At JBC, we recommend and facilitate like-affinity focus groups as a powerful tool to figure out where the pain points are within organizations and certain diverse communities, while also identifying what works and what employees love about coming to work.
The best first step toward designing a successful inclusion strategy for a diverse workplace is to listen to what your employees are saying.
Jennifer Brown
We usually share the following tactical recommendations to get started:
The idea of participating in focus groups can cause anxiety among employees and employers alike, especially for people with speech and language disorders. Even so, for those belonging to this or to other identity groups, they can serve as the vents where many of the suppressed emotions and pain points around diversity surface, particularly in an otherwise constrained workplace. As a result, some may express concerns about the intent of the exercise or oppose it altogether. As a diversity consultant and advocate, I’ve heard every argument against getting like-identity groups together to talk openly. “Isn’t this a case of special rights?”, “Aren’t we just inviting trouble by suggesting certain demographics get together to compare notes?”, and my favorite, “Isn’t this just another form of discrimination or exclusion?” Once people hear the feedback, however, they realize that we’ve created an environment where it’s safe for all participants to reveal more of who they are, be honest about their experiences, connect into a community, and get excited that the company is finally looking at their challenges with a closer eye.
The very act of conducting focus groups can cause a seismic shift in the conversation. Gathering feedback is instructive as well as inspirational for many. Participants consider offering their name and resources, leading the charge for new initiatives and bolstering the effort—all because they’ve been asked and included.
It can be difficult for the senior leadership team to hear what employees are saying. We have encountered bewilderment, finger pointing, and defensiveness from senior leaders who sincerely had no idea what the daily life of their employees comprised. If you are a leader, I encourage you to open yourself to hearing what your employees have to say through the safety of focus groups. It’s better to know than to pretend that everything is fine. It only represents a failure on your part if you then choose not to act to improve conditions on the trading floor, the manufacturing floor, or in the lab at your organization.
In order for individual employees to change, the culture around them has to begin to change. Good news, it doesn’t have to happen all at once. But there is inevitably low-hanging fruit in the analysis of the focus groups; there are quick steps a leadership team can take to let the employee population know that they’ve been heard and that more changes are going to come.
Just the mere fact that a company is undertaking a hard look at its culture and levels of engagement goes a long way toward making all of your employees feel Welcomed, Valued, Respected, and Heard℠.